N P D G (U K)
The Niemann-Pick Disease Group (UK) is a charitable organisation offering support and information to families affected by any type of Niemann-Pick disease and to associated professionals. Our aim is to make a positive difference to the lives of those affected by Niemann-Pick disease (NPD) and their families, through the provision of care and support, accurate information and the promotion of relevant research. We are committed to relieving sickness and distress amongst such families and, to providing emotional, as well as practical support. Through the development of a strong family support network, we help to reduce feelings of isolation and despair. We provide an information and advice service to health and social care professionals as well as to families and carers. The Group is continually developing educational information that will contribute to a greater understanding of the Niemann-Pick diseases and assist in family support.
Caters for the following age groups0 months To 99 years
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