Fragile X Society
The Fragile X Society was formed in 1990 by families whose children had just been diagnosed with Fragile X Syndrome. At that time there were no facilities to support and inform families about any aspect of fragile X, and so the Society came into existence. The charity has now grown to consist of a team of dedicated employees and volunteers. We want families to have the opportunity of support from others who understand the challenges which may be associated with fragile X, at the time of diagnosis and throughout their fragile X journey. We also want to ensure that families and professionals have access to full information about the syndrome, including the latest medical, psychological and educational research findings. We passionately believe that with a fuller understanding of the condition, individuals can be supported more effectively, to reach to reach their full potential
Caters for the following age groups0 months To 99 years
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